Dear Urologists,

Interstitial Cystitis patients really need you to help with this debilitating chronic horrible pain. Please stop sending us to pain management doctors that do not know what to do with us. We are living very limited lives. The government is taking the few medications that somewhat help. Depression, anxiety or panic attacks is what we are facing. IC is burning us day in day out. Please help us. Please make this condition an important matter. We are trying to raise awareness because that’s all we have. Please help this community. And to all my IC sisters and brothers please do not stop advocating. We need you too. Alot of IC patients are committing suicide and as sad as this is I DO NOT BLAME THEM. THIS HURTS BADLY IS TOO MUCH. Thank you for reading this. Mari Vasquez. The Raw Reality of Interstitial Cystitis.

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2 thoughts on “Dear Urologists,

  1. Hello! Nice blog you’ve started! I also have interstitial cystitis and it took me years to discover it’s actually associated with a mast cell disorder, which are little known or understood by many doctors. If you look into a group of conditions called MCAD, or mast cell activation disorders, you might find you have a lot of other symptoms that line up. I thought this might help as I’ve gotten great relief. There’s tons of info on it on my site or you could search it out elsewhere and there are even OTC supplements ypu can take that really help. I love what you’re doing here. There are a lot more IC and MCAD sufferers out there than are being diagnosed, that’s for sure! We need to get them the knowledge and education they need to end the terrible suffering. I can’t tell you how nice it is to have a (mostly) properly functioning bladder now. If I can help in any way, don’t hesitate to reach out!

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